Steven and Marisol are a young married couple who are concerned about passing genetic diseases on to

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Steven and Marisol are a young married couple who are concerned about passing genetic diseases on to their children. Members of Steven's family have been diagnosed with Huntington's disease, an incurable genetic disorder that causes cognitive problems, difficulties with movement that ultimately require full-time nursing care, and reduced life expectancy. Members of Marisol's family have tested positive for a mutation of the BRCA genes that are strongly associated with breast and ovarian cancer. At a family reunion, they are discussing their decision to use in vitro fertilization and preimplantation genetic screening of embryos. Steven's cousin, Valerie, is appalled. She is opposed to the idea of in vitro fertilization and to the entire idea of genetic screening. Valerie says, "You can't just choose the babies you want to have. God will only give you the challenges that He knows you can handle. And if a child is born with a disease, your job is to love that child, no matter what." Steven is speechless. But Marisol is not. "But if we can guarantee that our child is healthy and will live a happy life, shouldn't we do that? We don't want to raise a child who is doomed to genetic diseases." Valerie shakes her head. "There is no way to know," she says. "Kids get sick and die. Some who have diseases get better. You can't control everything. And besides, that test-tube baby stuff is really expensive. How can you afford it?" Now Steven replies, "We want to invest in this procedure now because it might save money in the long run. I've seen how much Huntington's costs a family-so have you. I'd rather pay to prevent it now than have to deal with the costs later." Valerie responds, "That sounds really rude. It sounds like you resent people who get sick and need your help. The whole thing is very selfish."
Whom do you agree with here: Steven and Marisol or Steven's cousin, Valerie? Is it wrong to want to prevent genetic disease? Is it a wise investment? Is it selfish to want to control your child's genes? Explain your answer.
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Ethics Theory and Contemporary Issues

ISBN: 978-1305958678

9th edition

Authors: Barbara MacKinnon, Andrew Fiala

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