• Using the list below. Can you offer some type of summary of the registry, including the information they collect, how that information is used, and the legal / ethical dilemmas that may arise in the use of this information.

Here is a list of current registries as listed on the National Institutes of Health (NIH, 2017)

• Alzheimer's Prevention Registry
• Breast and Colon Cancer Family Registries
• Breast Cancer Surveillance Consortium
• Breast Cancer Family Registry
• Cancer Genetics Network
• The Cerebral Palsy Research Network
• Cerebral Palsy Research Registry (CPRR)
• Clinical Trials Public Data Share Website
• Collaborative Islet Transplant Registry
• Colon Cancer Family Registry
• Congenital Muscle Disease International Registry (CMDIR)
• Consortium for the Longitudinal Evaluation of African-Americans with Early Rheumatoid Arthritis
• Development of a National Incompatible Kidney Transplant Registry
• Development of a Pediatric Myelodysplastic Syndrome Patient Registry
• Development of an Infertility Family Registry (IFRR)
• Disorders of Sex Development Network Patient Registry
• Dominantly Inherited Alzheimer Network (DIAN) Expanded Registry
• DS-Connect: The Down Syndrome Registry
• Dyskeratosis Congenita and Telomere Biology Disorders
• The Environmental Polymorphisms Registry (EPR) Using DNA to Study Disease
• eyeGENE: The National Ophthalmic Disease Genotyping and Phenotyping Network
• Foundation for Sarcoidosis Patient Registry
• GenomeConnect
• Global Rare Diseases (Patient) Registry and Data Repository (GRDR)
• Inherited bone marrow failure syndrome
• Interagency Registry for Mechanically Assisted Circulatory Support (INTERMACS)
• International Bone Marrow Transplant Registry Database
• International Registry of Werner Syndrome
• International Sjogren's Syndrome Registry, or SICCA(closed to new participants)
• Lupus Family Registry and Repository
• Myasthenia Gravis Patient Registry
• National Addiction & HIV Data Archive Program
• National Alopecia Areata Registry
• National ALS Registry
• National and State Cancer Registries
• National Marrow Donor Program (NMDP)
• National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions (GenTAC)
• NIDA Center for Genetics Research
• NIDCD National Temporal Bone, Hearing & Balance Pathology Resource Registry
• NIH Human Embryonic Stem Cell Registry
• NIH National Registry of U.S. Myotonic Dystrophy and U.S. Facioscapulohumeral Muscular Dystrophy (FSHD)
• Pediatric Imaging, Neurocognition, and Genetics (PING)
• The Preeclampsia Registry
• Rare Diseases Clinical Research Network Consortium of Eosinophilic Gastrointestinal Disease Researchers Contact Registry
• Research Registry for Neonatal Lupus
• Sample Collection Registry
• SEER registries
• Severe Chronic Neutropenia International Registry
• Shwachman-Diamond Syndrome International Registry and Repository
• Usher Syndrome Registry
• USIDNET Registry for Patients with Primary Immunodeficiency Diseases